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63
kms
My target 45 kms
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I’m fundraising for Epilepsy Ireland to support the 45,000 people living with epilepsy in Ireland.
Epilepsy is characterised by a discharge of electrical energy in the brain, but the way this affects each person is unique. With your help, Epilepsy Ireland can provide support tailored to the needs of each person and family living with epilepsy.
Your support will ensure that people with epilepsy and their families receive the information, advice, and support they need through a network of 11 Community Resource Officers. You will ensure public awareness of epilepsy is improved and stigma and misunderstanding is alleviated. You will help fund vital research projects to find new ways to manage and treat epilepsy and reduce its impact on people’s lives.
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A day that changed our lives
Wednesday 20th AugApril 14th 2022, a day we will never forget the day I lost my twin sister to Epilepsy.
Until then we as a family have never heard of SUDEP until the corornors report came back 6 months later with cause of death SUDDEN DEATH IN EPILEPSY.
Our world turned upside down.
ABOUT NATASHA
Natasha was diagnosed with Epilepsy at the age of 13, I remember her first seizure like it was only yesterday.
We were all at the table having dinner & she got up to get a glass of water & suddenly stopped & started shaking.
We laughed thinking she was messing until my mother screamed for my dad to come. She was rushed to hospital that evening & came home with an epilepsy diagnoses.
Her life changed from that day onwards. From blackouts weekly to seizures that would happen randomly day or during the night ,she had it hard.
With multiple brain surgeries that she was told by doctors were 100% successful but unfortunately were not & yet again she needed more medications.
I truly believe the medication messed with Natasha’s head & I will take that to my grave.
She was put on so many different medications with ridiculous side effects for each one & it made her very paranoid.
3 weeks before our 45th birthday Natasha had a seizure in her sleep & never woke up.
I have so many memories of my sister growing up but the one I will cherish forever is my last conversation with Natasha was when she was in hospital.
We walked up & down the corridors & chatted about when she gets out we will start training together , we joked ,she was showing me her muscles & laughed about who had bigger biceps.
I bought her flowers & she gave them back to me saying “what am I suppose to do with them here take them back “ 😂
We couldn’t stop laughing ,she was poker straight with her words, she would cut you in half ,anyone that knows her would say the same. Lol
But little did I know 2 weeks later she would be gone & we would never get to catch that training session with her.
I want to share Natasha’s story with others today to help raise awareness about SUDEP.
As a family who lived with Epilepsy for over 30years we were never spoken to about SUDEP & the risks involved & this needs to change!
As a tribute to Natasha I am taking on the 45km for 45k to help raise as much awareness & funds as possible.
Please join me!
