rebecca Rogers

The beginning of Cians journey

Monday 9th Feb Cian was 3 years old when he first had a seizure. In August 2022 he had a tonic clonic we as parents did not know what had happened and weren’t there either, he was rushed to the hospital and we were told that a child/adult could have 1 seizure in their life without a reason he was discharged and let home and exactly a month later september 2022 he had 4 tonic clonics within 7 minutes. He was giving the Diagnosis of Epilepsy and put on Keppra. 5 Months seizure free and unfortunately Cian had another tonic clonic in February 2023 which than the looked at his medication and changed it. From February 2023 to November 2025 Cian suffered Multiple different types of seizures including both generalised and focal epilepsy and was given the Diagnosis of Drug Resistant epilepsy. Cian has been trialed on multiple medications throughout his journey trying to find ones that suits his epilepsy. Cians also had Steven Johnson Syndrome ( reaction to anti epileptic medication). He unfortunately has had pneumonia aswell. He has had blood work sent to dublin an spent a week in Temple Street. Throughout Cians journey we seen our little happy boy go from the most out going person to the life been sucked out of him. Epilepsy has taken so much away from our boy. His walk was and has been affected and speech.